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Translating Informed Consent
While research involving human subjects once consisted primarily of research on people, advances in biobanking and big data have transformed the research landscape. Personal data and biospecimens are increasingly at the centre of research, giving rise to difficult questions about whether and how to apply legal and ethical principles that were originally developed to govern research on people. This talk will focus on the principle of informed consent and the challenges of translating the principle from one context to the other. It will explore challenges that arise around the individual's decision to participate, as well as those that emerge in the broader governance of research.
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